If you’re reading this, you aren’t alone.
I was born with a physical disability called AMC. I don’t have all my muscles in my arms and legs. My arms are effectively useless, and I can only walk short distances. Growing up, I never wanted to be treated differently or be left out so I pushed myself to keep up whenever I could. To my parents and teachers, I seemed determined to not let my disability stop me. In reality, I just wanted to fit in. I didn’t know anyone else with a disability until I was 8, and even then, I felt more isolated than before. I didn’t want to be grouped with other disabled kids because it made me stick out more than I already did. Because of this I always struggled with accepting the life I have versus the life I wanted.
As I got older, the rift that I felt between myself and my peers only seemed to get larger. No one understood the grief I felt for the life I couldn’t have. There have been times where all I could think was “If this is how I have to live my life, I don’t want it.” It took me a long time to finally understand that the problems I face, the life that I have, it is what made me who I am.
While realizing this, it made a big difference. Having a community has made the biggest difference. I was able to find an organization that has yearly conferences for people with my condition and I’ve been able to meet adults who have been through similar situations. They can give me advice as I get older, which gives me a safe space to feel understood and like I have more control over my life, instead of feeling alone in the dark.
If you’re reading this, you aren’t alone. There is always someone who will have some understanding. All you need to do is ask for help.
-Alex C., University of South Carolina Class of ‘22
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